A Working Group (WG) is composed of six to eight experts in a particular field of research. Each WG is tasked with recommending up to 15 measures for inclusion in a PhenX research domain that is selected by the Steering Committee (SC). Each WG has a chair or co-chairs, a liaison from the SC, and is supported by an RTI WG Manager and Supervisor. WGs use a consensus process to deliver a set of high-priority measurement protocols for inclusion in the PhenX Toolkit.
Review Existing Measures
- Review measures in the PhenX Toolkit to ensure that new measures complement existing Toolkit content
- Identify protocols currently in use in the field
- Assess diversity of data collection methods and applicability to a range of study designs
Select Measures
- Use the criteria established by the PhenX SC to identify potential protocols
- Select 12-18 established data collection protocols for community outreach
- Finalize 10- 15 protocols to include in the PhenX Toolkit
Communication
- Identify colleagues and individuals in the research community to review and comment on preliminary measures via outreach
- Work with RTI and NIH staff to evaluate input from the scientific community on preliminary measures and measurement protocols
- Identify scientific journals and professional meetings or conferences to present and promote use of PhenX measures
All WG members are required to:
- Attend one in-person WG meeting in the Washington, DC, metropolitan area
- Participate in two to four WG teleconferences
Timeline
The timeline for a WG is as follows:
Month 1 |
Participate in an introductory teleconference. |
Month 2 |
Attend an in-person WG meeting in the Washington, DC metropolitan area. |
Month 3 |
Discuss potential measures and measurement protocols via conference calls and emails and obtain protocols for community outreach |
Month 4 |
Draft and review datasheets for Outreach. |
Month 5-6 |
Conduct outreach on proposed protocols and participate in a post-outreach teleconference. |
Month 7 |
Make final recommendations of priority protocols to the SC. |
Month 8 |
Review measurement protocols to be released into PhenX Toolkit. |