Protocol - Spirituality in Chronic Illness

Add to My Toolkit

A 12-item questionnaire that is part of the FACIT© Measurement System that measures spiritual well-being among people with cancer and other chronic illnesses.

Specific Instructions



Limited Availability


Permission to use FACIT© scales can be obtained by completing a simple user’s agreement. Registering will grant access to the scoring and interpretation materials. There is no cost for academic researchers, however, there is a cost at the commercial level. All translations, adaptations, symptom indices, computer programs, and scoring algorithms, and any other related documents of the Functional Assessment of Chronic Illness Therapy (FACIT©) Measurement System, including the Functional Assessment of Cancer Therapy (FACT), are owned and copyrighted by, and the intellectual property of, David Cella, Ph.D. Copyright protection is extended to electronic versions of all FACIT documents and products.

Personnel and Training Required

The FACIT© scales are designed to be self-administered but can be administered by interview format (person-to-person and over the telephone).

The interviewer must be trained to conduct personal interviews with individuals from the general population. The interviewer must be trained and found to be competent (i.e., tested by an expert) at the completion of personal interviews. The interviewer should be trained to prompt respondents further if a “don’t know” response is provided.

Equipment Needs

The PhenX Working Group acknowledges these questions can be administered in a computerized or noncomputerized format (i.e., paper-and-pencil instrument). Computer software is necessary to develop computer-assisted instruments. The interviewer will require a laptop computer/handheld computer to administer a computer-assisted questionnaire.

Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered or interviewer-administered questionnaire


Adult, Senior


Adult cancer survivors, ages 18 and older

Selection Rationale

The 12-items were developed based on input of people with cancer or human immunodeficiency virus (HIV)/acquired immunodeficiency syndrome (AIDS), as well as hospital chaplains and other health-care providers.


English, Other languages available at source

Derived Variables


Process and Review

Not Applicable

Protocol Name from Source

Functional Assessment of Chronic Illness Therapy - Spiritual Well-Being (FACIT©-Sp-12 (Version 4))


Munoz AR, Salsman JM, Stein KD, Cella D. Reference values of the Functional Assessment of Chronic Illness Therapy-Spiritual Well-Being: a report from the American Cancer Societys studies of cancer survivors. Cancer. 2015;121(11):1838-1844. doi:10.1002/cncr.29286. Epub 2015 Feb 24. PMID: 25712603; PMCID: PMC4441564.

General References

Cella, D.F., Tulsky, D.S., Gray, G., Sarafian, B., Lloyd, S., Linn, E., Bonomi, A., Silberman, M., Yellen, S.B., Winicour, P., Brannon, J., Eckberg, K., Purl, S., Blendowski, C., Goodman, M., Barnicle, M., Stewart, I., McHale, M., Bonomi, P., Kaplan, E., Taylor, S., Thomas, C., & Harris, J. (1993). The Functional Assessment of Cancer Therapy (FACT) scale: Development and validation of the general measure. Journal of Clinical Oncology, 11(3), 570-579.

Webster, K., Odom, L., Peterman, A., Lent, L., & Cella, D. (1999). The Functional Assessment of Chronic Illness Therapy (FACIT) measurement system: Validation of version 4 of the core questionnaire. Quality of Life Research, 8(7), 604.

Winstead-Fry, P., & Schultz, A. (1997). Psychometric assessment of the Functional Assessment of Cancer Therapy-General (FACT-G) scale in a rural sample. Cancer, 79(12), 2446-2452.

Overcash, J., Extermann, M., Parr, J., Perry, J., & Balducci, L. (2001). Validity and reliability of the FACT-G scale for use in the older person with cancer. American Journal of Clinical Oncology, 24(6), 591-596.

Webster, K., Cella, D., & Yost, K. (2003). The Functional Assessment of Chronic Illness Therapy (FACIT) Measurement System: Properties, applications, and interpretation. Health and Quality of Life Outcomes, 1, 79.

Protocol ID


Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
Cancer Outcomes and Survivorship
Measure Name

Spirituality in Chronic Illness

Release Date

December 17, 2020


A 12-item questionnaire that covers the concepts of meaning, peace, and faith.


This measure assesses the spiritual well-being of patients with cancer and other chronic diseases.


Cancer outcomes and survivorship, Spirituality, cancer, FACIT©-SP-12 (Version 4), Functional Assessment of Chronic Illness Therapy, quality of life, QOL, cancer patient, survivorship, spiritual well-being

Measure Protocols
Protocol ID Protocol Name
321001 Spirituality in Chronic Illness

There are no publications listed for this protocol.