Protocol - Long COVID - Symptoms Due to COVID-19 - Screener
Description
This screener measures new or continuing self-reported COVID-19 symptoms. There are 36 different symptoms included in the list along with the option of specifying additional not listed symptoms.
Specific Instructions
None
Availability
This protocol is freely available; permission not required for use.
Protocol
Now I want you to think about symptoms you may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms?
*Select all that apply
[ ] Discomfort, tightness, or pressure in chest
[ ] New or worsening cough
[ ] Shortness of breath
[ ] Lack of energy or general tired feeling
[ ] Muscle weakness
[ ] Loss of appetite, like you just haven't been hungry
[ ] Feeling sick to your stomach or vomiting
[ ] Diarrhea
[ ] Muscle aches
[ ] Joint aches
[ ] Headache
[ ] Seizure
[ ] Dizziness
[ ] Having hallucinations, altered consciousness
[ ] Loss of ability to smell
[ ] Altered smell
[ ] Loss of ability to taste
[ ] Altered taste
[ ] Pain in teeth
[ ] Hair loss (alopecia)
[ ] Heavy limbs
[ ] Tremors
[ ] Rapid heart rate
[ ] Slow heart rate
[ ] Chills/Repeated shaking with chills
[ ] Difficulty sleeping
[ ] Insomnia (difficulty falling and staying asleep)
[ ] Hypersomnia (excessive sleepiness or drowsiness)
[ ] Disturbed sleep (nightmares, night sweats, etc.)
[ ] Foggy brain
[ ] Feeling down or depressed
[ ] Feeling anxious
[ ] Always feeling hot or cold (temperature dysregulation)
[ ] Feeling dizzy or lightheaded when standing up after sitting (orthostatic hypotension)
[ ] Eye problems
[ ] Prickling, burning, or numb sensation (neuropathy)
[ ] Ringing or buzzing in ears (tinnitus)
[ ] Skin problems
[ ] Other symptom #1 (specify)
[ ] Other symptom #2 (specify)
[ ] Other symptom #3 (specify)
[ ] Other symptom #4 (specify)
[ ] Other symptom #5 (specify)
[ ] Any additional symptoms (specify)
[ ] I have not experienced any new or continuing symptoms
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
Johns Hopkins COVID Long Study - Screener module is brief and easy to interpret. It is also broadly applicable in both clinical and general populations.
Language
English
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Not applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins University, Johns Hopkins COVID Long Study, January 2022, COVID-19: Symptoms Module, first question from page 19
General References
None
Protocol ID
992001
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms | ||||
PX992001010000 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Additional | ||||
PX992001010600 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_1 | ||||
PX992001010100 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_2 | ||||
PX992001010200 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_3 | ||||
PX992001010300 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_4 | ||||
PX992001010400 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_5 | ||||
PX992001010500 | Now I want you to think about symptoms you more | N/A |
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
Johns Hopkins, COVID, long COVID, symptoms, cough, short breath, lack of energy, illness, loss of smell, loss of taste, aches