Protocol - Long COVID - Symptoms Due to COVID-19 - Screener
Description
This screener measures new or continuing self-reported COVID-19 symptoms. There are 36 different symptoms included in the list along with the option of specifying additional not listed symptoms.
Specific Instructions
None
Availability
Protocol
Now I want you to think about symptoms you may have experienced after your initial illness. Have/had you experienced any new or continuing COVID-19 symptoms?
*Select all that apply
[ ] Discomfort, tightness, or pressure in chest
[ ] New or worsening cough
[ ] Shortness of breath
[ ] Lack of energy or general tired feeling
[ ] Muscle weakness
[ ] Loss of appetite, like you just haven't been hungry
[ ] Feeling sick to your stomach or vomiting
[ ] Diarrhea
[ ] Muscle aches
[ ] Joint aches
[ ] Headache
[ ] Seizure
[ ] Dizziness
[ ] Having hallucinations, altered consciousness
[ ] Loss of ability to smell
[ ] Altered smell
[ ] Loss of ability to taste
[ ] Altered taste
[ ] Pain in teeth
[ ] Hair loss (alopecia)
[ ] Heavy limbs
[ ] Tremors
[ ] Rapid heart rate
[ ] Slow heart rate
[ ] Chills/Repeated shaking with chills
[ ] Difficulty sleeping
[ ] Insomnia (difficulty falling and staying asleep)
[ ] Hypersomnia (excessive sleepiness or drowsiness)
[ ] Disturbed sleep (nightmares, night sweats, etc.)
[ ] Foggy brain
[ ] Feeling down or depressed
[ ] Feeling anxious
[ ] Always feeling hot or cold (temperature dysregulation)
[ ] Feeling dizzy or lightheaded when standing up after sitting (orthostatic hypotension)
[ ] Eye problems
[ ] Prickling, burning, or numb sensation (neuropathy)
[ ] Ringing or buzzing in ears (tinnitus)
[ ] Skin problems
[ ] Other symptom #1 (specify)
[ ] Other symptom #2 (specify)
[ ] Other symptom #3 (specify)
[ ] Other symptom #4 (specify)
[ ] Other symptom #5 (specify)
[ ] Any additional symptoms (specify)
[ ] I have not experienced any new or continuing symptoms
Personnel and Training Required
None
Equipment Needs
None
Requirements
Requirement Category | Required |
---|---|
Major equipment | No |
Specialized training | No |
Specialized requirements for biospecimen collection | No |
Average time of greater than 15 minutes in an unaffected individual | No |
Mode of Administration
Self-administered questionnaire
Lifestage
Adult, Senior
Participants
Adults aged 18 years or older
Selection Rationale
Johns Hopkins COVID Long Study - Screener module is brief and easy to interpret. It is also broadly applicable in both clinical and general populations.
Language
English
Standards
Standard | Name | ID | Source |
---|
Derived Variables
None
Process and Review
Not applicable
Protocol Name from Source
Johns Hopkins COVID Long Study
Source
Johns Hopkins University, Johns Hopkins COVID Long Study, January 2022, COVID-19: Symptoms Module, first question from page 19
General References
None
Protocol ID
992001
Variables
Export VariablesVariable Name | Variable ID | Variable Description | dbGaP Mapping | |
---|---|---|---|---|
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms | ||||
PX992001010000 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Additional | ||||
PX992001010600 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_1 | ||||
PX992001010100 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_2 | ||||
PX992001010200 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_3 | ||||
PX992001010300 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_4 | ||||
PX992001010400 | Now I want you to think about symptoms you more | N/A | ||
PX992001_Long_Covid_Symptoms_Screener_New_Continuing_Symptoms_Other_5 | ||||
PX992001010500 | Now I want you to think about symptoms you more | N/A |
Measure Name
Long COVID - Symptoms Due to COVID-19
Release Date
March 17, 2023
Definition
This is a measure of an individual’s new or continuing COVID-19 symptoms.
Purpose
Presence of lingering COVID-19 symptoms is a sign of Long COVID, and use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.
Keywords
Johns Hopkins, COVID, long COVID, symptoms, cough, short breath, lack of energy, illness, loss of smell, loss of taste, aches
Measure Protocols
Publications
There are no publications listed for this protocol.