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Protocol - Long COVID - Comorbidities and COVID-19 Impact

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Description

This protocol helps better describe and understand the patient experience and recovery of those with confirmed or suspected COVID-19, with a specific emphasis on Long COVID experience especially with pre-existing conditions.

Specific Instructions

None

Availability

Available

Protocol

Lifestyle & Pre-existing Conditions

1. Did you have any of these pre-existing conditions/diagnoses or did you experience any of the following pre-COVID?

[ ] Food Allergies

[ ] Environmental Allergies (dust, mold)

[ ] Chemical Allergies

[ ] Seasonal Allergies

[ ] Allergies of unknown origin

[ ] Other allergies

[ ] Insomnia

[ ] Lucid dreams (dreams where you are aware you are dreaming or have some control over what you dream)

[ ] Nightmares

[ ] Vivid dreams

[ ] Night sweats

[ ] Sleep apnea

[ ] Acid Reflux Disease

[ ] Celiac Disease

[ ] Crohn's Disease

[ ] Ulcerative Colitis

[ ] Irritable Bowel Syndrome (IBS)

[ ] Other GI issues

[ ] Asthma

[ ] COPD

[ ] Tuberculosis

[ ] Eczema

[ ] Viral skin conditions (cold sores, herpes, warts, molluscum)

[ ] Dementia

[ ] Seizures/epilepsy

[ ] Migraine

[ ] ALS

[ ] Parkinson's disease

[ ] Multiple Sclerosis

[ ] Peripheral neuropathy

[ ] Coronary Heart Disease

[ ] Heart failure

[ ] Hypertension (high blood pressure)

[ ] Hypotension (low blood pressure)

[ ] History of clotting

[ ] History of strokes

[ ] High cholesterol / hyperlipidemia

[ ] Mitral valve prolapse

[ ] Anemia

[ ] Autism

[ ] Auto-immune/rheumatological conditions

[ ] Cancer (all types)

[ ] Chronic kidney disease

[ ] Diabetes Type 1

[ ] Diabetes Type 2

[ ] Ehlers-Danlos Syndrome (EDS)

[ ] Endometriosis

[ ] Fibromyalgia

[ ] IgA deficiency

[ ] Interstitial Cystitis (Bladder Pain Syndrome)

[ ] Hepatitis (A/B/C)

[ ] HIV

[ ] Mast Cell Activation Syndrome (MCAS)

[ ] Myalgic Encephalomyelitis / Chronic Fatigue Syndrome (ME/CFS)

[ ] Obesity

[ ] Postural Orthostatic Tachycardia Syndrome (POTS)

[ ] Recurrent bacterial infections

[ ] Recurrent viral infections

[ ] Restless leg syndrome

[ ] TMJ (temporomandibular joint dysfunction)

[ ] Vertigo

[ ] Vision: near-sighted/far-sighted

[ ] Vitamin D deficiency

[ ] None of the above

2. Please indicate other pre-existing conditions/diagnoses not listed here. If multiple, please separate them with a comma. Please only list the conditions, no descriptions or explanations.

____________________________________

3. Did any of your pre-existing conditions change during the course of COVID-19 symptoms?

[ ] Yes, they got worse.

[ ] Yes, they got better.

[ ] Some got better, some stayed the same, some got worse (please add an explanation in the text boxes in the following page).

[ ] No, they stayed the same.

[ ] N/A (I did not have any pre-existing condition)

3a. If any of your pre-existing conditions got worse, please describe here. (optional)

____________________________________

3b. If any of your pre-existing conditions got better, please describe here. (optional)

____________________________________

Personnel and Training Required

None

Equipment Needs

None

Requirements
Requirement CategoryRequired
Major equipment No
Specialized training No
Specialized requirements for biospecimen collection No
Average time of greater than 15 minutes in an unaffected individual No
Mode of Administration

Self-administered questionnaire

Lifestage

Adult

Participants

Adults aged 18 years or older

Selection Rationale

PhenX used input from the PhenX Steering Committee to enable rapid response and release of COVID-19 related protocols in the Toolkit.

Language

English, Spanish

Standards
StandardNameIDSource
Derived Variables

None

Process and Review

Not Applicable

Protocol Name from Source

Online Survey on Recovery from COVID-19

Source

University College London (2022). Online Survey on Recovery from COVID-19, Section “Lifestyle & Pre-existing Conditions”

General References

None

Protocol ID

992401

Variables
Export Variables
Variable Name Variable IDVariable DescriptiondbGaP Mapping
PX992401_Comorbidities_Covid_Impact_Other_Pre_Existing_Condition
PX992401020000 Please indicate other pre-existing more
conditions/diagnoses not listed here. If multiple, please separate them with a comma. Please only list the conditions, no descriptions or explanations. show less
N/A
PX992401_Comorbidities_Covid_Impact_Pre_Existing_Condition
PX992401010000 Did you have any of these pre-existing more
conditions/diagnoses or did you experience any of the following pre-COVID? show less
N/A
PX992401_Comorbidities_Covid_Impact_Pre_Existing_Condition_Better
PX992401030300 If any of your pre-existing conditions got more
better, please describe here. (optional) show less
N/A
PX992401_Comorbidities_Covid_Impact_Pre_Existing_Condition_Change
PX992401030100 Did any of your pre-existing conditions more
change during the course of COVID-19 symptoms? show less
N/A
PX992401_Comorbidities_Covid_Impact_Pre_Existing_Condition_Worse
PX992401030200 If any of your pre-existing conditions got more
worse, please describe here. (optional) show less
N/A
Long COVID
Measure Name

Long COVID - Comorbidities and COVID-19 Impact

Release Date

May 26, 2023

Definition

This is a measure of an individual’s pre-exisiting conditions prior to COVID-19 infection.

Purpose

Pre-exisiting conditions can impact symptom severity and lingering COVID-19 symptoms (Long COVID). Use of this measure helps with understanding people’s experience with COVID-19 and implications of Long COVID.

Keywords

coronavirus, COVID-19, pre-existing conditions, health history, UCL, University College London

Measure Protocols
Protocol ID Protocol Name
992401 Long COVID - Comorbidities and COVID-19 Impact
Publications

There are no publications listed for this protocol.